Tuesday, April 14, 2009

I have a new baby with DS, I just wondered if anyone else was in my shoes and what their advice is?

New Down Syndrome mom.

I have a new baby with DS, I just wondered if anyone else was in my shoes and what their advice is?
You have a rare gift %26amp; I hope you have the help %26amp; support of others in your life. These children are the true essence of what love %26amp; trust should be for all humans. They are by far, the best judge of character of any humans I have encountered in my 53 years on this planet! I helped raise a neighbors son for 5 years, until he turned 10 %26amp; she put him in an institution because the state agencies recomended it in the 1960%26#039;s. Everything he learned was discouraged, and he was reduced to a slobering imbecile. When I would go on visits, he remembered that I had never mistreated him, and this made the nurses so upset they restricted his visits to his mother only. His older brother and I treated him as any other child and he responded to us in a way that was frowned upon and not acceptable in that era. We moved and lost contact with this family and I do not know what ever became of my friend. They said he could never hold a spoon or feed himself, or dress himself. They were wrong! He just learned differently, and it took a lot of time and patience, as well as routine and repitition. But most of all, it took lots of cleaning up and thinking up new ways to go about the things most %26quot;normal%26quot; people take for granted. MOST IMPORTANT IS KEEP YOUR HANDS TO YOURSELF!(no hitting) One act of anger can take months, or years to heal on their part. These are extremely sensitive beings and can be the first one to alert you to another persons (or animals) ill intentions. They have the ability to judge character and intent on an immediate need basis without regard to another persons feelings. They are stubborn beyond belief because they have to be to survive. They are extremely loving individuals and have memories for people, places and things that are astounding. Once I was grocery shopping and a group was on an outing, and as I walked past the group, an adult suddenly held out her arms and rushed towards me as if we were old friends or close family! I figured it was ok to respond in the same manner, and the group leader almost had a cardiac arrest in the aisle. She later told me that I looked a lot like the girls aunt and apoligized and thanked me for being so understanding. She was concerned that I might file a lawsuit and it was then that I realized just how little some things had changed, and how much others had! I would choose to be hugged by a person who has no hidden agenda, rather than the person who does. You are not alone %26amp; I wish you all the best in life.
Reply:Wow! It%26#039;s hard to believe that a whole year has passed since I first answered this question! I hope that you %26amp; your baby have had a good year together. Thanks. Report It

Reply:My son is 18 mos and the pain I felt when I found out he has Down Syndrome is still really fresh. Make sure you get family support, and early intervention, and a good pediatrician. And just love your baby it will get easier. I look and my baby and forget about his DS all the time. Just enjoy your baby right now.
Reply:the only advice i can give is to love. i%26#039;m not a mom, but i%26#039;m an aunt, and i think the best thing you can give a child is love.



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